I am at what is likely the beginning of my journey, and as such I spend countless hours each week trying to soak up all the information that I can to help educate myself and equip me to become an advocate for my child. I still hope that W will grow out of many of his allergies, but until that time I want to be prepared.
The problem that I run into is that those with the experience to share seem to focus their information on topics that are certainly relevant but years into my future.
So much is said about empowering our children to speak up about their allergies, but mine can't even tell me that he is hungry?
I have read several articles on getting children a 504 plan in place for safety at school, but again that is at least 4 years into my future, and right now I have to worry about what my child will eat at daycare.
There are issues to dealing with a babies with allergies such as the possibility of developing oral aversion or weight problems. I want to find these stories. It helps to see so many stories of older children with allergy problems because I know that at one time they too were babies and "look at them now," but I also want to know how they made it through those first years. How the day to day was before it became routine.
Please share any suggestions, links, etc. that could not only help my family but also others that may be taking their first steps into this journey as well. And thank you!
No comments:
Post a Comment